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422 questions
Did Anyone Tried Vitiligo Organic Cream?
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

Thank you Sovanny

posted November 19, 2022
Is Anybody Else Having Problems With Getting Your Insurance Company To Cover The Medication Opzelura?
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

My insurance denied. I appealed and they are now sending prescription. Told them it's the only thing that has helped. In the meantime, derm gave me two 5g sample tubes, which will last a while, so… read more

posted February 20
Good Morning. Anyone Else Experience Itching On The Vitiligo Spots?
A MyVitiligoTeam Member asked a question 💭

I mostly itch on my hands and arms. I'm wondering is that common with vitiligo?

A MyVitiligoTeam Member

Yes…mine itch too. When they want to get active, they start to itch. I didn’t realize about the joints. That’s good to know. I’ve noticed mine get painful sometimes, and then it goes away. Not… read more

posted December 23, 2022
Tattoos
A MyVitiligoTeam Member asked a question 💭

I was told by a family member that getting tats can cause spreading?? I have a sleeve and several other tats but never noticed spread due to tats or that i noticed. I have how ever noticed it spreads under them but not covering them, Anyone here got a opinion ?? for years ive said i was going cover my spots with tats but at this point its spread to much . I have always been embarrassed especially when ppl ask questions or points it out I never understood why some ppl went out of there way to… read more

A MyVitiligoTeam Member

I have a half sleeve but at this point gonna go for full sleeves on both arms , probably hands too, when I have the money. So little pigment left on arms and hands anyway, unless my doctor thinks… read more

posted August 26, 2023
Is There Anyone Who Has Minor Vitiligo, Got Vaccine And Vitiligo Increased?
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

I’m very sorry you are going through this. I had it prior to the shots but after it progressed more than it ever had before in a short period of time.

posted January 16
COVID-19 and Vitiligo Essential Updates Read more >
What Type Of Makeup Best Covers Vitiligo?
A MyVitiligoTeam Member asked a question 💭

I have tried Dermablend. I don't like it because it turns my skin orange. HELP!

A MyVitiligoTeam Member

Oh my email is:
(Email address can only be seen by the question and answer creators)

posted January 25, 2022
Could You Share Any Dietary Changes And Tips That Have Helped With Vitiligo?
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

I have vitiligo for last 24 years , now a days it's spreading 4th time rapidly. I got back all pigment with few diet restrictions and I got results thought it was slow but it worked I swear. I was… read more

posted April 30 (edited)
How Do You Handle Meeting People For The First Time, Especially Coworkers? What Do You Tell Yourself?
A MyVitiligoTeam Member asked a question 💭

Also, if you notice someone staring or glancing do you explain your condition or keep it moving?

A MyVitiligoTeam Member

Maybe if someone is staring its not your skin but your pretty smile? I don't give it any attention either way.

posted May 10
Has Anyone Else Experienced Hair Loss?
A MyVitiligoTeam Member asked a question 💭

Has anyone else experiened hair loss? Every place my vitiligo spreads I am losing hair as well. It just streted spreading to my head where I have white hair appearing. Im very scared to lose my hair.

A MyVitiligoTeam Member

No Hair loss, but hair line, eyebrow have turned white.

posted January 12
Has Anyone Been Successful Getting Opzelura?
A MyVitiligoTeam Member asked a question 💭

When I saw that Opzelura had received FDA approval for vitiligo, I scheduled an appointment with a dermatologist. The dermatologist seemed pessimistic that it would be approved by my insurance, so she discussed what I understood to be a compounding pharmacy that specialized in dermatology. I received a denial letter from the insurance company and contacted this specialized pharmacy. They said they had received a denial for Opzelura and there was no option to pay cash for this cream. Has anyone… read more

A MyVitiligoTeam Member

Thanks so much! I'll find a compound pharmacy.

posted August 4, 2023
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