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I don’t know how to get on with it ( as someone kindly put to me)
my 9 year old baby girl had dx with vitiligo.it broke my heart too, she cheerful beautiful girl, that the reason i need support group with same condition, we can share and face it together
It works better on my face than anywhere else so it may do well around lips. It seems to work better for me when I apply it, let it soak in a bit, then gently cover the area with A and D ointment… read more
Hello in my opinion I think multi vitamins is a good way to start
I used a cream called Protopic 0,1%
For the first 3 months it removed a spot on my neck. After a while it stopped working and the spread of my vitiligo started to increase.
I also was recommended to take vitamin D tablets (1000 ICU) and Zinc. I have found that the spread is not reversing or slowing down. Seeing that there actually isn't really a cure, I have come to a point where I have stopped using the creams.
I too have found that nothing works I've learned to deal with it in every spot that I have received begins as a heart and I still have many that look like hearts. I think it's a kiss from God and to… read more
AHowe hello and welcome to My Vitiligo Team! To answer your question on Genetic testing for vitiligo is primarily conducted within the research setting to study the genetic basis of the condition and… read more
I agree but this does NOT
stop me from traveling !
Here is a link to what I believe is the best video on youtube with the latest and greatest details on current and up and coming treatments as well as recommended vitamins and their dosages...etc.
Hello
I'm Daniel and have just joined here. I got diagnosed with generalized Vitiligo. I have it on my hands, too.
I'll have to wear sterile gloves at work (medical sector).
I've read about potentially harmful ingredients in Latex gloves (phenols) that can aggravate Vitiligo on the hands.
Source: https://vitiligosociety.org/about-vitiligo/.
Apparently molecules containing an aromatic ring or Sulhydryl groups are potentially dangerous.
I'm starting to believe that sterile Nitrile gloves are… read more
There are gloves to protect your skin but they are very expensive it is site online called fox glove protection for vitiligo. I have about 4 pair of them but they are expensive
Please contact me if you are interested in participating. You maybe compensated for your time and travel.
(Phone number can only be seen by MyVitiligoTeam users)
(Email address can only be seen by MyVitiligoTeam users)
How did the trial go?
I’m 39 and my vitiligo started back in may of this year. It’s on both of my eyebrows and I noticed my vision is getting worse and worse with a lot of sensitivity to light.
I feel like I read an article months ago on vitiligo and vision. If I can find it I’ll share it.
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