Vitiligo Questions and Answers | MyVitiligoTeam

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Real members of MyVitiligoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
381 questions
Sorry L Have Been Away My Son And Mom Passed!
A MyVitiligoTeam Member asked a question 💭

I dread the summer now that it will be hot sun and beaches but unfortunately not for me because of my Vitiligo!!😥 l have had it for 29 years!

A MyVitiligoTeam Member

So sorry
Bug hug
I'm new

posted February 28
How Do Beverages With Caffeine Affect Your Vitiligo?
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

How can I purchase some of this soap?

posted March 15
I'm Trying To Quit Coffee And Struggling. Is Anyone Drinking Mushroom Coffee And Have Good Results Such As Slowing The Spread Of Vitiligo
A MyVitiligoTeam Member asked a question 💭
Hello, Has Anyone From This Group Used Protopic 0.1% Ointment? If Yes, Did It Work Or At Least Help?
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

Thank you Michael!

posted February 27
Does Skin Grafting And Cell Transfer Hurt
A MyVitiligoTeam Member asked a question 💭
Are We Any Way Closer To Getting A Cure??? I Dread The Summer Coming When I Know My Appearance Will Change So Much.
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

Brave
I guess I'll get to that eventually

posted February 27
I Have Vitiligo Around My Mouth And In The Last Couple Weeks It’s Been Very Pink/ Red Why Is It Pink And What Can I Do To Help It?
A MyVitiligoTeam Member asked a question 💭

It feels like it’s spreading a little and hasn’t really for a year, and I use sunscreen so I don’t think it’s sunburn.

A MyVitiligoTeam Member

Mine also first affected the lips people thought is HIV, just avoid stress and stop using lip sticks

posted February 28
Do I Need To Let The Doctor Know I Have The Skin Condition
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

Yes moreso a dermatologist

posted February 28
Hi There, What Is Best Treatment To Cover Or Hide Vitiligo In The Scrotum Area? Thank Very Much
A MyVitiligoTeam Member asked a question 💭
Can Opzelura Harm Healthy Skin?
A MyVitiligoTeam Member asked a question 💭

I have some pale patches I'm not sure are vitiligo. Doc said to use opzelura on them and that it won't harm the healthy skin, but is that right? I asked AI (Gemini), and it said opzelura can lighten healthy skin. Plus, opzelura is expensive, and I don't want to waste a precious ounce on pale but healthy skin. I have a black light but am having trouble distinguishing vitiligo from healthy skin. Everything seems to fluoresce.

A MyVitiligoTeam Member

I've been a little skeptical with opzelura so far. March 1 will be month 5. I've been using it in small areas where my vit is. I have not seen anything promising yet but I have seen some new spots… read more

posted February 18
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