Connect with others who understand.

sign up log in
Resources
About MyVitiligoTeam

Connect with others who understand.

sign up log in
Resources
About MyVitiligoTeam
Real members of MyVitiligoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Psoralen + UVA (PUVA) phototherapy"

reset

Psoralen + UVA (PUVA) Phototherapy

Psoralen + UVA (PUVA) Phototherapy

When my vitiligo started I was treated with this medication and also tripsoralen I had to take the pills half an hour later take a sun cover very well my eyes. Very expensive medication. But between has skin cancer or cure the vitiligo I choose not continue with this medication ( it was for years) not result wasting money a frustrating

A MyVitiligoTeam Member said:

That’s the right actitud. When people Drs etc notice that you are anxious to find cure for your condition they take advantage of this , very few people really want to help you. I went to a lot. I… read more

posted over 2 years ago

Has Anyone Else Ordered A Home Phototherapy "machine"?

Has Anyone Else Ordered A Home Phototherapy "machine"?

Dr. Lim just approved this for me as it is 40 minutes to treatment each way and getting harder with work. I am just wondering if it will be a big machine as well, how would I operate it alone, and where would I put it?

Would love to hear from someone who has done this.

And - I am not even sure yet if my insurance will cover it yet.

Have a great day!

A MyVitiligoTeam Member said:

Thank you so much everyone. I appreciate your comments and shares.

Daavlin just contacted me and it appears to be a big unit. I am looking forward to not going to the the doc's anymore for treatment… read more

posted 12 days ago

What Other Conditions Did You Get After Getting Vitiligo?

What Other Conditions Did You Get After Getting Vitiligo?

I’m wondering what other conditions people got after being diagnosed with vitiligo. Or before for that matter. I’ve seen some discussions of psoriasis. What other conditions did you get? Did they come before or after the vitiligo?

A MyVitiligoTeam Member said:

Vitiligo age 8 and then hashimotos thyroid age 29 now scalp psoriasis. Yay! 😑

posted 4 months ago

Narrowband UVB (NB-UVB) Phototherapy

Narrowband UVB (NB-UVB) Phototherapy

I have not discussed this with any doctor because it scares me. However I have the question of whether this is to return the skin color and is it an ongoing treatment? Is it expensive treatment?

Thank you,
Martina.

A MyVitiligoTeam Member said:

Hi qu
Thank you for this information. I am tight with cash but it doesn't seems too expensive, definitely making an appointment with dermatologist to check this up maybe I can apply it around my lips… read more

posted about 1 year ago

I Have Melasma And Vitiligo

I Have Melasma And Vitiligo

I am going through menopause and developed dark patches of Melasma on my cheeks. I also have small white patches of vitiligo. Being brown I am now 3 colours on my face!. My vitiligo appears trauma induced and is present on elbows, arms and knees.
I wonder when the melasma goes if vitiligo will replace the dark patches? Has anyone experienced this?

A MyVitiligoTeam Member said:

Hi I hope your phototherapy helped🙏🙏

posted 7 months ago

Laser Phototherapy

Laser Phototherapy

Does anyone use a IV lamp or laser phototherapy at home. Has it been successful? Which one do you use? Can you please share a link

A MyVitiligoTeam Member said:

Yes have bought dermfix for my son. Have only been using it for a few days now. The instructions manual is very limited. Does anyone else use it. Some tips will be great

posted 11 months ago

IV Lamp Or Laser

IV Lamp Or Laser

Does anyone use a IV lamp or laser phototherapy at home? Has it been successful? Which one do you use? Can you please share a link
I looked into the clinics that does the laser but it’s so expensive and my insurance doesn’t cover it

Saw this post from 3 months ago but didn’t see any responses. Very interested as I recently got diagnosed

A MyVitiligoTeam Member said:

Thank you!!

posted 2 months ago

Vitiligo On Hands

Vitiligo On Hands

If anyone would be so kind as to answer this question. I know everyone’s spots are different and unique, but was just getting a sense of an idea on what’s going on with my hands. Even though this can be different for everyone, this helps me get a bit calm in understanding how it happened to others, plus I LOVE hearing everyone’s story about how it started with vitiligo. This helps me not feel so alone with this next chapter of vitiligo.

I pray this doesn’t seem intrusive to anyone. So if… read more

A MyVitiligoTeam Member said:

My spots began around my mouth when I changed my regular toothpaste for a fluoride free brand. I noticed my lips became extremely dry. Changed back to original toothpaste. Spots cleared up on face… read more

posted 19 days ago

Protopic (Tacrolimus) 0.1% Use In Children

Protopic (Tacrolimus) 0.1% Use In Children

Hi my son (8) has been having UVB treatment for vitiligo for about 6 months now with good effect.
The dermatologist has prescribed him Protopic to use alongside the UVB treatment, but everything I can find about it says this concentration shouldn't be used in children under 16yrs and I don't really know what the side effects might be.

Has anyone else used this treatment with there child?
Thanks

A MyVitiligoTeam Member said:

Yes, along with limited sun exposure his eye lids, neck and temple have re-pigmented.

posted 21 days ago