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Real members of MyVitiligoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Psoralen + UVA (PUVA) phototherapy"

Psoralen + UVA (PUVA) Phototherapy
A MyVitiligoTeam Member asked a question 💭

When my vitiligo started I was treated with this medication and also tripsoralen I had to take the pills half an hour later take a sun cover very well my eyes. Very expensive medication. But between has skin cancer or cure the vitiligo I choose not continue with this medication ( it was for years) not result wasting money a frustrating

A MyVitiligoTeam Member

That’s the right actitud. When people Drs etc notice that you are anxious to find cure for your condition they take advantage of this , very few people really want to help you. I went to a lot. I… read more

Is Vitiligo A Non-communicable Disease?
A MyVitiligoTeam Member asked a question 💭
Has Anyone Else Ordered A Home Phototherapy "machine"?
A MyVitiligoTeam Member asked a question 💭

Dr. Lim just approved this for me as it is 40 minutes to treatment each way and getting harder with work. I am just wondering if it will be a big machine as well, how would I operate it alone, and where would I put it?

Would love to hear from someone who has done this.

And - I am not even sure yet if my insurance will cover it yet.

Have a great day!

A MyVitiligoTeam Member

I use Dermalume 2X from National Biological Corp. UVB Narrowband. Use it twice a week. Improvement is slow. If nothing else, it stops the spread.

Is Phtotherapy Safe For The Kids ?
A MyVitiligoTeam Member asked a question 💭

I am from india, my son is having vitiligo. from 6 years we have been using different ayurvedic treatments over the years but its spreading. the major problem for me is the diet that comes with ayurvaedic treatment cannot vive give any food that is sour ( citric / Vitamin c ) and many more.

The reson for not going for phototherapy is hearing phototherapy is carsinogenic and it causes skin cancer. with kid i didnt want to take risk. But i heard the panel discussion from the experts and would… read more

A MyVitiligoTeam Member

Narrow band UVB phototherapy could be an safer option and has been tested with no signs of cancer risk

Has Anyone Tried Psoralen (Metoxalene) ?
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

Hi Antonio, I have not tried Psoralen yet but I have read some encouraging and inspiring results from people using it. I am making an appointment with my dermatologist to learn more about it and… read more

What Other Conditions Did You Get After Getting Vitiligo?
A MyVitiligoTeam Member asked a question 💭

I’m wondering what other conditions people got after being diagnosed with vitiligo. Or before for that matter. I’ve seen some discussions of psoriasis. What other conditions did you get? Did they come before or after the vitiligo?

A MyVitiligoTeam Member

Psoriasis at 12, Psoriatic Arthritis at 18 and Vitaligo at 60

Is It Even Worth Using All These Creams And Medicines To Try And Stop The Spread Of Vitiligo?
A MyVitiligoTeam Member asked a question 💭

I used a cream called Protopic 0,1%

For the first 3 months it removed a spot on my neck. After a while it stopped working and the spread of my vitiligo started to increase.

I also was recommended to take vitamin D tablets (1000 ICU) and Zinc. I have found that the spread is not reversing or slowing down. Seeing that there actually isn't really a cure, I have come to a point where I have stopped using the creams.

A MyVitiligoTeam Member

I too have found that nothing works I've learned to deal with it in every spot that I have received begins as a heart and I still have many that look like hearts. I think it's a kiss from God and to… read more

I Have Melasma And Vitiligo
A MyVitiligoTeam Member asked a question 💭

I am going through menopause and developed dark patches of Melasma on my cheeks. I also have small white patches of vitiligo. Being brown I am now 3 colours on my face!. My vitiligo appears trauma induced and is present on elbows, arms and knees.
I wonder when the melasma goes if vitiligo will replace the dark patches? Has anyone experienced this?

A MyVitiligoTeam Member

Hi Carolyn
I'm late to this thread party. If you're still there I'll say two things
One, welcome to the menopause club! Whoohooo!!!
Two, if you're interested, you could try VV to even out your skin… read more

Narrowband UVB (NB-UVB) Phototherapy
A MyVitiligoTeam Member asked a question 💭

I have not discussed this with any doctor because it scares me. However I have the question of whether this is to return the skin color and is it an ongoing treatment? Is it expensive treatment?

Thank you,

A MyVitiligoTeam Member

Hi qu
Thank you for this information. I am tight with cash but it doesn't seems too expensive, definitely making an appointment with dermatologist to check this up maybe I can apply it around my lips… read more

Does Phototherapy Works For Segmental Vitligo?
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member