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Real members of MyVitiligoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Sun protection"

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Does Anyone Have Recommendations For Sun Screen?

Does Anyone Have Recommendations For Sun Screen?

I have had vitiligo since 2010 in a 34 yr old male. It affects different parts of my body and I am not concerned with treatment. I am concerned with protection from the sun. I have noticed this year my hands are basically completely white. I usually tan very easily in the summer. My face is affected as well and it has spread to more of my face. I am curious as to what the best options out there are for sun screen? Thanks in advance.

A MyVitiligoTeam Member said:

Hello
I use the Neutrogena products. Ultra Sheer body mist with spf 70. Also Neutrogena makes one specifically for the face which is also spf 70
Of course if you swim they must be reapplied.… read more

posted 3 months ago

Does Vitiligo Put Us At Risk For Other Diseases, And If So, Which?

Does Vitiligo Put Us At Risk For Other Diseases, And If So, Which?

A MyVitiligoTeam Member said:

My blood work came back nearly perfect last year in Nov I think mine happened when I cracked a tooth and got very nervous and upset that I may need a root canal also noticed after working in the… read more

posted about 1 year ago

Protopic (Tacrolimus) 0.1% Use In Children

Protopic (Tacrolimus) 0.1% Use In Children

Hi my son (8) has been having UVB treatment for vitiligo for about 6 months now with good effect.
The dermatologist has prescribed him Protopic to use alongside the UVB treatment, but everything I can find about it says this concentration shouldn't be used in children under 16yrs and I don't really know what the side effects might be.

Has anyone else used this treatment with there child?
Thanks

A MyVitiligoTeam Member said:

Yes, along with limited sun exposure his eye lids, neck and temple have re-pigmented.

posted 21 days ago

Water Polo

Water Polo

Hello, I was wondering if anyone here with Vitiligo plays waterpolo. My son was diagnosed in January. And he loves waterpolo he’s played for years. Right when he was diagnosed my first thought was he’s going to have to stop playing. His dermatologist didn’t seem worried and actually talks to him about the sport. But as a parent and spending so much time in the sun I worry and am concerned about his Vitiligo spreading and becoming worse.

A MyVitiligoTeam Member said:

Thank you so much for the reply, I really appreciate it:) That’s what I don’t want to do is ban him from playing the only sport he LOVES and is great at. He already having a hard enough time coping… read more

posted 4 months ago

Vitiligo On Hands

Vitiligo On Hands

If anyone would be so kind as to answer this question. I know everyone’s spots are different and unique, but was just getting a sense of an idea on what’s going on with my hands. Even though this can be different for everyone, this helps me get a bit calm in understanding how it happened to others, plus I LOVE hearing everyone’s story about how it started with vitiligo. This helps me not feel so alone with this next chapter of vitiligo.

I pray this doesn’t seem intrusive to anyone. So if… read more

A MyVitiligoTeam Member said:

My spots began around my mouth when I changed my regular toothpaste for a fluoride free brand. I noticed my lips became extremely dry. Changed back to original toothpaste. Spots cleared up on face… read more

posted 19 days ago

Is There A Recommended Diet To Keep New Spots From Forming?

Is There A Recommended Diet To Keep New Spots From Forming?

A MyVitiligoTeam Member said:

Hi Froggipool, I thought this for a very long time, but the more I look into how the guts 'microbiome' and affect on overall health, my views are significantly shifting.

If what we eat leaves us… read more

posted 2 months ago

Vitiligo And Vitamin D

Vitiligo And Vitamin D

just curious -- since I am one of the 99% lost pigment and incredibly sensitive to sun and avoid it 99% of the time -- anyone else in this situation? do you have to stay on top of D levels with supplements regularly or just expose yourself anyway?

A MyVitiligoTeam Member said:

I do take Vitamin D Also when outside I use 50 spf sunscreen. (Lotion not spray)

posted 3 months ago

Has Anyone Else Ordered A Home Phototherapy "machine"?

Has Anyone Else Ordered A Home Phototherapy "machine"?

Dr. Lim just approved this for me as it is 40 minutes to treatment each way and getting harder with work. I am just wondering if it will be a big machine as well, how would I operate it alone, and where would I put it?

Would love to hear from someone who has done this.

And - I am not even sure yet if my insurance will cover it yet.

Have a great day!

A MyVitiligoTeam Member said:

Thank you so much everyone. I appreciate your comments and shares.

Daavlin just contacted me and it appears to be a big unit. I am looking forward to not going to the the doc's anymore for treatment… read more

posted 12 days ago