I have had vitiligo since 2010 in a 34 yr old male. It affects different parts of my body and I am not concerned with treatment. I am concerned with protection from the sun. I have noticed this year my hands are basically completely white. I usually tan very easily in the summer. My face is affected as well and it has spread to more of my face. I am curious as to what the best options out there are for sun screen? Thanks in advance.
Hello
I use the Neutrogena products. Ultra Sheer body mist with spf 70. Also Neutrogena makes one specifically for the face which is also spf 70
Of course if you swim they must be reapplied.… read more
Hi my son (8) has been having UVB treatment for vitiligo for about 6 months now with good effect.
The dermatologist has prescribed him Protopic to use alongside the UVB treatment, but everything I can find about it says this concentration shouldn't be used in children under 16yrs and I don't really know what the side effects might be.
Has anyone else used this treatment with there child?
Thanks
Hello, I was wondering if anyone here with Vitiligo plays waterpolo. My son was diagnosed in January. And he loves waterpolo he’s played for years. Right when he was diagnosed my first thought was he’s going to have to stop playing. His dermatologist didn’t seem worried and actually talks to him about the sport. But as a parent and spending so much time in the sun I worry and am concerned about his Vitiligo spreading and becoming worse.
If anyone would be so kind as to answer this question. I know everyone’s spots are different and unique, but was just getting a sense of an idea on what’s going on with my hands. Even though this can be different for everyone, this helps me get a bit calm in understanding how it happened to others, plus I LOVE hearing everyone’s story about how it started with vitiligo. This helps me not feel so alone with this next chapter of vitiligo.
I pray this doesn’t seem intrusive to anyone. So if… read more
just curious -- since I am one of the 99% lost pigment and incredibly sensitive to sun and avoid it 99% of the time -- anyone else in this situation? do you have to stay on top of D levels with supplements regularly or just expose yourself anyway?
Dr. Lim just approved this for me as it is 40 minutes to treatment each way and getting harder with work. I am just wondering if it will be a big machine as well, how would I operate it alone, and where would I put it?
Would love to hear from someone who has done this.
And - I am not even sure yet if my insurance will cover it yet.
Have a great day!