watch on demand life with a skin condition candid conversations and vitiligo | MyVitiligoTeam

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Is Vitiligo A Fungus Causing The Discoloration? Has Anyone Else Been Told That It’s Also Associated With Thyroid Disorders?
A MyVitiligoTeam Member asked a question 💭

I was told this by two doctors that Vitiligo is a fungus -I was also told by a dermatologist that is also associated and related to Hypo Thyroidism -Does anyone else have any information on this ? Are both Autoimmune issues too? Any feedback greatly appreciated

Kindly TL

A MyVitiligoTeam Member

While it may not be a fungus, I have experiened a higher susceptibility to fungal infections on my skin. It makes me wonder if skin biome composition interacts with fungus differently
I have read… read more

How Did Your Diagnosis Go? I Had My Doctor Look At The White Patches, Say Vitiligo And Thats It. Are There Tests That Should Be Asked For?
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

I went to a dermatologist for something else, showed them the small white spot under my arm, she said you have Vitiligo, put this ointment on. It may help, but it will be slow. That was it - Nothing… read more

How Does Vitiligo Effect Your Hearing And Eyes
A MyVitiligoTeam Member asked a question 💭

VITILIGO

A MyVitiligoTeam Member

Moira hello! Vitiligo can cause hearing loss, which is estimated to affect 12–38% of people with the condition. This is because vitiligo can destroy auditory melanocytes, which are cells in the inner… read more

Do I Need To Let The Doctor Know I Have The Skin Condition
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

Yes moreso a dermatologist

Is There A Genetic Test That Can Be Done For Vitiligo?
A MyVitiligoTeam Member asked a question 💭
A MyVitiligoTeam Member

AHowe hello and welcome to My Vitiligo Team! To answer your question on Genetic testing for vitiligo is primarily conducted within the research setting to study the genetic basis of the condition and… read more

Could A Student Of Psychology, With Vitiligo, Have The Liberty Of Asking For Help 😊
A MyVitiligoTeam Member asked a question 💭

Hello everyone
I am Jasna, a student of psychology, with vitiligo since my teenage years, and with a mindset shaped around feeling a bit differently and yet eager to overcome, help others, and be the best version of myself
I am currently working on my master’s thesis in Graz, Austria, which is focused on trying to help people with this skin condition, and I would very much appreciate hearing from you and being able to share more information on this matter - looking forward to that… read more

A MyVitiligoTeam Member

Embrace it! Research people that live with it gracefully! I wear alot of cute Vitiligo t-shirts and people come up and ask questions.

Should I Avoid Going To The Pool?
A MyVitiligoTeam Member asked a question 💭

Last summer, when I went swimming at my pool where I live, I forgot to/didnt put sun screen lotion on my face and the vitiligo suddenly appeared and spread all over my face, oh my god. My question is, I absolutely love going swimming, should I stop going to the pool from now on? If I put a 55+ sunscrean lotion on my face and body, can I still go to the pool? Or should I get a body bathing suit? This is a terrible situation we are all in!! Please anyone tell me if I can still go swimming, even… read more

A MyVitiligoTeam Member

Nancy3 hello I looked up an answer to your question on the internet and your answer is the following as written below
"Is chlorine water bad for vitiligo
Swimming- Vitiligo is a sensitive skin… read more

I’ve Just Been Diagnosed With Hashimoto’s Thyroiditis.
A MyVitiligoTeam Member asked a question 💭

It’s a mild case right now, but I don’t know what expect down the road. Any advice on how to live healthfully with this condition?

A MyVitiligoTeam Member

Thank you, GB. So happy to learn that you had success with the therapy you describe.

First World Problem/question...lol...helpful Suggestions On Not Stressing Over This?
A MyVitiligoTeam Member asked a question 💭

So true first world problem....as part of a performance award in my corporate role, will get to go to a resort in Mexico. I ought to be thrilled. Yet, my anxiety over how to not be "the weird one" and avoid the sun on the beach while trying to be part of the group has me a bit stressed. Self imposed anxiety, right? Anyone else have universal vitiligo and try to "fit in" on a flipping beach? Lol...

A MyVitiligoTeam Member

Aside from concerns about sun exposure as somone else mentioned, which is valid, I agree with others on the importance of not letting your condition limit you from social events. A counselor offered… read more

How Do You Handle Meeting People For The First Time, Especially Coworkers? What Do You Tell Yourself?
A MyVitiligoTeam Member asked a question 💭

Also, if you notice someone staring or glancing do you explain your condition or keep it moving?

A MyVitiligoTeam Member

Maybe if someone is staring its not your skin but your pretty smile? I don't give it any attention either way.