My girl has white spots on her face, eyebrow and eyelash.. she points that and tells everyone that it is white.
It is expanding and some area respond well to medication.
Any recomendation?
Hi
VitFriends support group has very helpful avenues to connect kids with other kids who have vitiligo as well as reading materials and good advice...support for you as well. I would look them up on… read more
Hi Brendaminer. I have commented and ask others for their experience with Tri Luma. I hope is ok with you.
I read the review for Tri Luma (hydroquinone) effectiveness, and it does not mention… read more
Thank you for this information.
I was finally able to get the Opzelura cream approved by my insurance. My dermatologist had to write a letter.
Many thanks for your quick response, Eric....I haven't been able to find info on this anywhere. Just a quick follow up question: When you say Opzelura is a drug you have to "take" it sounds like you… read more
Hi all.. I just wondered if anyone has tried the use of vitamin b12/d3, folic acid and possibly copper and zinc tablets to treat/cure vitiligo and if you have, what results did you get please?
I take co-enzyme B complex with folate as I have a genetic eye condition known as PEX and at least one of my doctors feels there could be a correlation with vitiligo.no results on skin after about a… read more
My insurance denied. I appealed and they are now sending prescription. Told them it's the only thing that has helped. In the meantime, derm gave me two 5g sample tubes, which will last a while, so… read more
When I saw that Opzelura had received FDA approval for vitiligo, I scheduled an appointment with a dermatologist. The dermatologist seemed pessimistic that it would be approved by my insurance, so she discussed what I understood to be a compounding pharmacy that specialized in dermatology. I received a denial letter from the insurance company and contacted this specialized pharmacy. They said they had received a denial for Opzelura and there was no option to pay cash for this cream. Has anyone… read more
Thanks so much! I'll find a compound pharmacy.
Unfortunately, I can't seem to find a doctor who cares enough to look into this further. I just keep getting "wear sunscreen" and "moisturize dry spots". I am and it isn't helping!
Yes without sunscreen its not possible for me to go out in day time. Heat rashes and itching immediately starts and generally stays upto a week. Early morning and late evening are the best times to… read more