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A MyVitiligoTeam Member asked a question 💭
Southfield, MI
July 10, 2025
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A MyVitiligoTeam Member

Thank you for the information. Much appreciated. My Dr. prescribed meloxicam. After reading the side affects I decided not to take it. I was shopping for a new supplemental insurance plan and was rejected because of that medication. I don't think doctors realized that. It's on the list that automatically rejects you because it is prescribed for cancer and is off label for Vitiligo. This insurance company wouldn't let me even appeal it. Fortunately I had applied to another company just before that who accepted me. I never took the medication which I explained however they said because I filled the RX I would still be rejected. They have a reporting agency for drugs which underwriters check. When in Los Angeles I went to a beauty supply where they sell to the movie industry. The lady sold me some makeup used for covering tattoos which is waterproof so it doesn't come off when you wash your hands. She mixed 2 colors together and it's perfect when the spots start spreading again. I only use it when I have to go somewhere special..... I use shea butter from L'Occitane to moisturize my hands... Dr. wanted to put me on the new JAK inhibitor by Phizer (Litfulo) used for Alopecia. You have to have monthly blood draws. My cholesterol was a little high so I'm not taking it yet. I see him at the end of August I will find out what the plan is. Vitiligo is also on the breasts, lower and upper abdomen as well...

July 31, 2025
A MyVitiligoTeam Member

Medicare covers the light treatments so I go twice a week. I never have itching on the patches. I also did laser treatments on my hand it worked for a bit but became active in the middle of treatment. Very frustrating...

July 30, 2025
A MyVitiligoTeam Member

Thank you Kim. Never heard of tea tree foot lotion for hands. I have previously tried clobetasol rotating every other day with tacrolimus. I'd have to try again to see if it helps since I don't remember it was 4 years ago. The only thing is it can thin your skin on the hands, we don't want that... The doctor switch me to triamcinolone 0.1% I don't think it helped. The Opzelura appeared to help but it came back even worse right in the middle of using it. People have said it doesn't really work on hands since there are no hair follicles.

July 29, 2025
A MyVitiligoTeam Member

Only thing that helps hands for me is clobetasol, then rest for a week. 2 weeks on 1 week off. It is the resting period where I see re pigmentation. I apply tea tree foot lotion in my off weeks.

July 29, 2025
A MyVitiligoTeam Member

I Denise, thank you for sharing. I had some patches on my butt chicks, and on the rear part of my thighs. Those went away with phototerapy (I fabricated my own to use at home, using a 36 watt phillips lamp).
In my fingertips, I have had not success so far. I tried phototerapy 3 years and now 1 year using Opzelura. So far, no improvement but it has not worsen, a win in my book. I started micro needling 1 month ago.

December 24, 2025

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A MyVitiligoTeam Member asked a question 💭
McLean, VA

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