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Real members of MyVitiligoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Who Has Done The Uv Light Treatment? And Did It Work? If So How Long Approximately For A Spot?
A MyVitiligoTeam Member asked a question 💭
posted December 11, 2022
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A MyVitiligoTeam Member

I started the narrowband UVB treatments back in 2002 at a dermatologists office. After about 6 month of office treatments, the PA suggested trying to get my own light panel. My insurance paid for it and it was shipped to my house. I still use it, but I can never completely repigmented. I would start getting freckles around hair follicles and it would gradually fill in. My hands and knees never got any freckles.

posted January 24
A MyVitiligoTeam Member

Thank you that information is helpful considering to buy one and do it at home on my spare time. Just didn't want to waste money and time if it wasn't going to be effective.🙂

posted December 12, 2022
A MyVitiligoTeam Member

I am doing the UV light treatment I did notice a difference after about a month and a half so I'm still going through it it does help.

posted December 12, 2022
A MyVitiligoTeam Member

HI Jenny
UV light can br really succesful but does not always work. It worked for me in the past on my 70% full body vitiligo, Was an extensive regime of weeks and weeks of prescribed Full canopy UVB in a hospital. It takes time for the VItiligo patches to build up tolerance to the UVB starting at only seconds to longer minutes as treatment progresses.
It is very, very important that no burning occurs! A slight pink erythema is desirable and shows a correct dose, this in time will turn to little brown dots which join together as the treatment continues.
I used Tacomilus 0.1% under presciption for six weeks prior to the UVB treatment.

Please note that this is still not a cure and even if you get good repigmentation the Vitiligo will most likely slowly spread back over time. Even the new Opzelura cream is not a cure and will most likely require maintenance over time to stop the Vitiligo coming back.

If you are going to explore treating yourself only for a small area with a handheld Philips narrowband UVB, get medical advice first and be very, very careful! as burns will not show till some hours after.

I hope this helps.

posted December 12, 2022

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