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Unfortunately anyone has felt some level of acceptance or rejection. While dating someone that never spoke about my vitiligo. Had a friend that pulled me to the side to let me know , i would have a… read more
Has anyone tried applying tacrolimus with self tanner? I use the St. Tropez one. Will this affect the medication's potency over time by any chance?
Here is a link to latest and greatest from Dr. Pearl E. Grimes MD. This has great details on current and upcoming treatments as well as vitamin recommendations and corresponding dosages.
https://www.youtube.com/watch?v=Y-MJ7Wdlj18
I know that this is a self-answered question, but posting as I believe this is great video that everyone on this site should watch.
Hope this helps. Please remember to "like" the video to show our support of the great work that Dr. Grimes does!
Does anyone follow a particular diet following your vitiligo diagnosis? What would a typical breakfast/lunch/dinner look like?
I'm reading lots of literature on reducing or eliminating dairy, fish, meat ( aside from chicken) and citrus fruits, turmeric, some vegetables, junk food (obviously) and a whole host of other things. It appears one would need to follow a really strict diet to trial and error what triggers patches.
There are also articles suggesting folic acid, vitamin B12 and vitamin… read more
Hello no matter what our condition i believe that a plant based diet is the key to a healthy life. And the healing of our bodies. one must also have and believe in the Most Hight and walk by faith… read more
I’m on opzelora for about 5 months . I also do narrow band uvb light therapy three days a week. I have large areas of vitiligo. All my spots are showing repigmentation. My vitiligo spots are very… read more
I honestly don’t mind my vitiligo, I think it gives me character! But, I am worried about other autoimmune disorders that I may be predisposed to. I often have a lot of stomach issues, and I have recently had thyroid cancer and my thyroid removed because of Hashimoto’s. Wondering what other things you have all experienced related to your vitiligo diagnosis.
Hi
I too have had my thyroid removed and was also diagnosed with thyroid cancer. With all the stress of going through all this, I started to get brown spots all over my face. It took me 40 years to… read more
The tubes are 60g. I have I new one and one that has been use twice. Let me know if you’re interested.
I was just diagnosed with V last week after having the pigmentation problem for a probably 5 or so years. Earlier this year, I requested a full thyroid panel because I was experiencing hypothyroid-esque symptoms. The only thing to come back abnormal (and it was very mild) was my T3. It was low. Therefore, they diagnosed me with Euthyroid Sick Syndrome. I’ve been taking 10mcg of Cytomel and have since felt better
Fast forward to this last week. The Dermatologist (first one I’ve ever seen) tells… read more
But I do notice that psoriasis seems to get more attention regarding pamphlets and mentions compared to vitiligo which makes you feel more like a freak with this secret hushed not high profile issue.
I don’t know how to get on with it ( as someone kindly put to me)
my 9 year old baby girl had dx with vitiligo.it broke my heart too, she cheerful beautiful girl, that the reason i need support group with same condition, we can share and face it together
Has anyone experienced regaining some pigmentation on a vitiligo patch on the face after using Protopic regularly for a period of time?
It has softened the spots my daughter has if she uses it consistantly.
