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It feels like it’s spreading a little and hasn’t really for a year, and I use sunscreen so I don’t think it’s sunburn.
Mine also first affected the lips people thought is HIV, just avoid stress and stop using lip sticks
I have some pale patches I'm not sure are vitiligo. Doc said to use opzelura on them and that it won't harm the healthy skin, but is that right? I asked AI (Gemini), and it said opzelura can lighten healthy skin. Plus, opzelura is expensive, and I don't want to waste a precious ounce on pale but healthy skin. I have a black light but am having trouble distinguishing vitiligo from healthy skin. Everything seems to fluoresce.
I've been a little skeptical with opzelura so far. March 1 will be month 5. I've been using it in small areas where my vit is. I have not seen anything promising yet but I have seen some new spots… read more
I have been using it for two months now. I apply it two times a day. I also do light treatments for some areas. I was hoping others could share their expereinces.
I am using daily. 2x a day. It has helped the eyebrows a lot since this post, but my cheeks continue to see depigmentation in areas of application. What light do you use?
I was taking part in a football tournament today. The weather was gloomy but over time the sun 🌞 showed up which is rare in the UK 🇬🇧.
I made the silly mistake of not putting on sun block.
Now both my arms which near enough covered in vitiligo has turned pinky redish.
Any suggestion what I can do.
I won't make the mistake of remembering to put on sunblock.
Aloe works for me. I would suggest growing an aloe plant. They grow inside well, dont like too much water. Great to soothe skin. Great in general even on non sunburned skin.
My hair started becoming more Grey, than white on my white spots. It looks like bald spots.
It works better on my face than anywhere else so it may do well around lips. It seems to work better for me when I apply it, let it soak in a bit, then gently cover the area with A and D ointment… read more
Has anyone else experiened hair loss? Every place my vitiligo spreads I am losing hair as well. It just streted spreading to my head where I have white hair appearing. Im very scared to lose my hair.
No Hair loss, but hair line, eyebrow have turned white.
I went to a dermatologist for something else, showed them the small white spot under my arm, she said you have Vitiligo, put this ointment on. It may help, but it will be slow. That was it - Nothing… read more
Yes!! I also often got mistaken for being way younger than I actually was BEFORE vitiligo
It is discouraging, I was proud of how young I used to look
My eyebrows are almost all gray, along with… read more
AHowe hello and welcome to My Vitiligo Team! To answer your question on Genetic testing for vitiligo is primarily conducted within the research setting to study the genetic basis of the condition and… read more
